Update on my dad. He has a rare form of cancer called a Chordoma (Gary Seniseās son had it as well but his was in his brain stem/upper spinal cord). My dadās chordoma is in his tailbone.
Heās been going down to MD Anderson every three months or so for MRI, CT Scan, and blood work, monitoring the size and growth of the tumor. Itās sitting right inside his tailbone and pushing on his sciatic nerve, causing terrible pain in his lower back and traveling down the back of his leg along his hamstring and into his feet. He went down to MDA about a month ago and found it hadnāt grown. Two weeks later, he had been hiding from my mom and I that heād been in terrible pain, couldnāt sleep, etc. He went to an urgent care and took some shot that I canāt remember the name of and is able to sleep now. Heās been taking so many different meds (muscle relaxers, pain meds). I told my mom that she needs to take all the meds and be the pharmacist. Iām afraid heāll take some stuff and not know what heās taking. Hell, 3 weeks ago, I threw my back out and was laid up for a week and I didnāt even need to go get a prescription because he had everything the doctor I went to see told me he was going to write me a script for. Thatās when I knew it was bad.
Anywho, heās supposed to be going back down in April and starting Keytruda. The cancer is so rare that no one really knows how to treat it. They want him to be the guinea pig.
Heās also unimpressed with how MDA is running now compared to what it was in 2016 when he was last there.
Sorry for the long post. Yāall keep up the good fight.