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Posted
3 hours ago, MissingInAction said:

Final round of chemo delayed another week due to low WBC. Took down two bags of blood which got the globins back up. Thanks to all the donors out there.

Good news is I'll be able to attend the surly game watching party.

They giving you Neulasta injections on your off weeks to force your bone marrow to produce white blood cells?

Posted
5 hours ago, Vanilla Strange Gato said:

They giving you Neulasta injections on your off weeks to force your bone marrow to produce white blood cells?

I get those the following monday after chemo. That's all the cocksucker insurance will pay for.

Posted
I once went to radiation in the morning and then stopped in the cafeteria at Methodist and grabbed a fruit punch Gatorade and a quesadilla and headed across the Skybridge to Scurlock Tower for chemo. 
 
I got fussed at by Bobbi and Renee (chemo nurses) for bringing hot food to the infusion room.  Hot foods give off more aroma and can trigger the other patients to puke if they are teetering on the brink of nausea. 
 
Halfway thru my infusion I took my IV pole to the restroom to take a whiz and empty my bag.  I was sure I had internal bleeding because my bag was full of red liquid!!!
Bobbi and Renee said “did you drink anything with red food coloring in it?”
No more red or purple for me during the year I had a bag.  It was pretty apparent to me at that point why the instructions for the days prior to a colonoscopy say to not have any red or purple liquids a few days prior.
As for corn, it should only be consumed as chips or tortillas.  Kernels are like eating lead pellets as far as I’m concerned. 

I went into resection with the doc telling my I was 50/50 on getting a temp. I interpreted that as I wasn’t getting one and I was wrong. Nobody likes ileos but some people hate them worse than others. I hated it. Only had it two months but worrying about and dealing with that thing day-to-day fucking sucked. Hated it.
Posted
1 hour ago, Basil said:


I went into resection with the doc telling my I was 50/50 on getting a temp. I interpreted that as I wasn’t getting one and I was wrong. Nobody likes ileos but some people hate them worse than others. I hated it. Only had it two months but worrying about and dealing with that thing day-to-day fucking sucked. Hated it.

I had it for a year. Changed the flange maybe every fifth day?  Nobody at work could tell I had one. 
 

It was horrible to wake up to but turned out to be very manageable and probably helped me avoid some side effects. 
 

Had mine for a year.   

Posted
1 hour ago, MissingInAction said:

$3500 is what the dr told me.

One clinic I went to charged my insurance $1200 for Neulasta.  When I switched clinics at my first recurrence, the new clinic charged $6000 to insurance for that shot.   
 

They always wanted inject in the stomach because it was not supposed to hurt as much. 
 

Bullll sheeeet

I think there was Karo syrup in that little syringe.  It was slow going. 

Posted
One clinic I went to charged my insurance $1200 for Neulasta.  When I switched clinics at my first recurrence, the new clinic charged $6000 to insurance for that shot.   
 
They always wanted inject in the stomach because it was not supposed to hurt as much. 
 
Bullll sheeeet
I think there was Karo syrup in that little syringe.  It was slow going. 

Probably. But there are some good drugs out there.
Posted
31 minutes ago, Anton Chigurh said:

The shot didn’t bother me too much, but the bone pain can be shitty. FYI, Claritin actually helps with that, oddly enough (it counters the effects of all those histamines from the WBCs).

I wonder if Singulair would have helped?   Singular suppresses the production/formation of histamine - which for me works far better than trying to treat the presence of histamine after it is formed.  A decade ago it gave me a new lease on life dealing with my adult asthma in pollen season spring on my street full of oak trees.   Shit works. Bigly. 

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Posted
1 hour ago, Anton Chigurh said:

The shot didn’t bother me too much, but the bone pain can be shitty. FYI, Claritin actually helps with that, oddly enough (it counters the effects of all those histamines from the WBCs).

I was able to escape most of the bone pain.  My spine and neck would ache the first day after a shot but it went away after that.  But man there isn’t much to do to get pain out of your bones. 

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