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Brisketexan

Anyone have a kid with mono?

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The boy (16) has been incredibly fatigued for two months.  Like, well beyond ordinary sleepy teenager.  It impaired his ability to function, perform at school, etc.  It all blew up about 10 days ago, when we got a school progress report that was...not good.  He broke down, told us that he just couldn't shake being constantly exhausted, which left him feeling overwhelmed, which spiraled into depression.  Like, serious enough for us to be very concerned for his well-being.  We went in to our family counselor, who almost immediately said that the boy did not look well (it had been three months since they'd last seen each other).  He suggested that we get him to the Dr. and specifically have him tested for mono.  We already had a Dr. appointment scheduled for bloodwork etc., and added mono to the list.

Well, they called us two days later to tell us yep, he'd had mono.  Not currently infected, but had the markers for a recent infection.  Which all ties back to an inexplicable and lengthy sore throat he had in late August, and then a decline in energy that really kicked in mid-late September...and has been ongoing.  So, of course we're kicking ourselves for not looking at an underlying physical ailment when he went downhill, but now at least we know.

He's still very fatigued -- like, he needs 13+ hours of sleep a night, if he can get it.  He has experienced a peak in frequency of migraines -- like one per week.  And it has impacted his school attendance and performance.  We're meeting with the counselor tomorrow morning (we're grateful that he's in a private school now), so we think we can help him salvage the semester, maybe even take some incompletes and finish things out after the Xmas break.

But my question is -- what are your experiences with kids with mono?  How long can they be impaired by it?  What should we expect?  I'm sure it varies, I'm just looking for some other experiences to help us understand.

By the way, this whole experience sucks like hell.  He's 16, and shitty at regulating his physical and mental health, so to have something like this hit him has REALLY thrown him for a loop.  I just want my kid to be okay, physically and mentally.

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sorry to hear brisket.  i'm glad you guys found the underlying cause and that it was physical and not psychological.  

 

our 7 year old has had it three times.  each time we caught it after a week of him showing symptoms usually not associated with flu/colds (not able to walk, listless,  change in bahavior, etc).  for him though it only took a couple days after the antibiotics started to get over it.  does mono manifest differently in younger children?  

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8 minutes ago, Patricio Swayze said:

I got it when I was 17. Ended up in the hospital for 3 days. It sucked. That’s all I got.

Are you sure he isn’t fatigued from chronic masturbation?

I got it when I was 18, wiped me out for a couple of weeks (and come to think of it, it was right before first semester of sophomore year, my worst academic semester ever.....huh, interesting.  Of course, I was also drinking 6 days a week and chasing girls all the time...that surely didn't help).  But we have friends who actually had to be hospitalized and take an incomplete on a semester of college, and others who barely muddled through a semester, using Xmas break to recover.  So, it seems to vary.

And chronic masturbation didn't wear ME out back in the day, so I suspect that's not his problem.

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And chronic masturbation didn't wear ME out back in the day, so I suspect that's not his problem.


I don’t know man, these younger generations seem pretty lame. Probably can’t handle a full generation x masturbation workload.

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My daughter (no pics) got it her first year at UT. It sucked but no lasting affects that we know of. That was nine years ago.

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Yeah I had it for like 2 months when I was 17. Just fucking exhausted. Thankfully (but also sucked) that it was during summer.  And I do rarely got/get sick that it was a nightmare. Just sleeping all day and barely able to eat Bc of the sore throat. 

And I got it being in close proximity to the school skank who obviously was A carrier of every known disease. (No we didn’t make out, I was a horny gay teen no y but not horny enough for that) 

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17 hours ago, Patricio Swayze said:

I got it when I was 17. Ended up in the hospital for 3 days. It sucked. That’s all I got.

Are you sure he isn’t fatigued from chronic masturbation?

Why not both?

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22 hours ago, Brisketexan said:

And chronic masturbation didn't wear ME out back in the day, so I suspect that's not his problem.

Did you have access to porn of any and all types at your fingertips 24/7?  Shit, I'd probably have rubbed it clean off if I was 16 today.  Fortunately at my advanced age, I exhibit more self-control.

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7 minutes ago, Sbbruin said:

  Fortunately at my advanced age, I exhibit more self-control.

Come on, just admit you fall asleep faster for longer periods now.

Rumor is the extra rest is the secret to Armybrat's longevity.

Edited by ShaggyBevo RIP

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Congrats(?) on your 16 year old having game.
Don't assume the migraines are related to the mono.

Yeah, he had migraines before (family history from both sides), but we’ve seen a spike the past 6-8 weeks.

He’s still completely exhausted. School told him to stay home this week, and we’re trying to figure out an academic path forward.

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1 hour ago, Brisketexan said:


Yeah, he had migraines before (family history from both sides), but we’ve seen a spike the past 6-8 weeks.

He’s still completely exhausted. School told him to stay home this week, and we’re trying to figure out an academic path forward.

Have you tried a food elimination diet to see if they are diet triggered? My wife had migraines for 20 years until a doctor had her do a food elimination diet.  She discovered wheat was her trigger. She eliminated wheat from her diet and hasn't had a migraine in close to 15 years.

Basically, take your diet to chicken, rice, oatmeal, veggies, fruit(minus citrus), and fish(but no shellfish) for 10 days and then add in one item per day and see if it triggers anything.

Edited by ShaggyBevo RIP

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3 minutes ago, ShaggyBevo RIP said:

Have you tried a food elimination diet to see if they are diet triggered? My wife had migraines for 20 years until a doctor had her do a food elimination diet.  She discovered wheat was her trigger. She eliminated wheat from her diet and hasn't had a migraine in close to 15 years.

We'll be working on that.  He's got a neurologist appointment, and he also works on that.  My wife has been through the process -- some foods and drinks are triggers (e.g., red wines), so if she ingests those, she gets a migraine.  But she still gets them, just with less frequency than if she was drinking wine all the time.

So, the migraines as a whole are a work in progress.  The acute spike in frequency...we're THINKING it's connected to the mono, but shit, nobody can be sure.  About the only thing we can say with confidence is that he has real-deal brutal fatigue/exhaustion, still.

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^^^
We drink European, South American, and Napa estate grown only as we are both sensitive to sulfites. Other areas liberally apply sulfur to keep grapes from getting mold. Don't assume Napa wines are using Napa grown grapes. Make sure they are Napa estate grown as they truck in San Joaquin Valley grapes at night when tourists' eyes are shut.

Thinking about trying one of the new sulfite wine filters to see how we react to wines we know we react to once filtered.  https://ullowine.com

Edited by ShaggyBevo RIP

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There's a good chance that the mono has caused some dehydration and seriously depleted his electrolytes, potassium, and other vitamin levels over time.  The potassium levels alone could be working against him.  I would get some electrolyte replacement drinks going (vitamin water zero, pedialyte, MiO flavor enhancer that specifically has electrolytes, etc.) and also get him taking some Vitamin D, C, B12, & A supplements with meals. Also, get him to eat more foods with higher potassium contents (don't do supplements, because you don't want to do too much potassium...just try and get it through nutrition alone).

Here's a list of high potassium, nutritious foods:  https://www.webmd.com/diet/foods-rich-in-potassium#1

 

 

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There's a good chance that the mono has caused some dehydration and seriously depleted his electrolytes, potassium, and other vitamin levels over time.  The potassium levels alone could be working against him.  I would get some electrolyte replacement drinks going (vitamin water zero, pedialyte, MiO flavor enhancer that specifically has electrolytes, etc.) and also get him taking some Vitamin D, C, B12, & A supplements with meals. Also, get him to eat more foods with higher potassium contents (don't do supplements, because you don't want to do too much potassium...just try and get it through nutrition alone).
Here's a list of high potassium, nutritious foods:  https://www.webmd.com/diet/foods-rich-in-potassium#1
 
 

Interesting. He’s been craving OJ for about 6 weeks. Seriously, not something we usually keep on hand, and he’s been pounding it.

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There's some symptomatic migraine relief with Botox injections.  Not cure, but symptom relief.  Neuro exam is a good idea. 

It seems like a "tragedy" now, but taking time off from school, delaying graduation or graduation plan changes may be beneficial in the larger plan. He is probably not able to learn well with the present fatigue so, in addition to the stress, he may not catch some things he will need later in his academic life. 

Take some irons out of the fire...let the game slow down. 

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There's some symptomatic migraine relief with Botox injections.  Not cure, but symptom relief.  Neuro exam is a good idea. 
It seems like a "tragedy" now, but taking time off from school, delaying graduation or graduation plan changes may be beneficial in the larger plan. He is probably not able to learn well with the present fatigue so, in addition to the stress, he may not catch some things he will need later in his academic life. 
Take some irons out of the fire...let the game slow down. 

Yeah...this really seems like the plan. Really, it all came to a head when his academic performance just plummeted. And when confronted about it, he just broke. He had been feeling overwhelmed, was falling way behind...and it mostly tied back to him being exhausted. He couldnt stay awake or focus in school, and when he came home, he’d nap for 3-5 hours instead of homework. Which led to anxiety, depression, and despair. Really, we just need to focus on getting healthy in body and mind. Everything else will follow.

We’re grateful that we moved to a private school this year - they know this drill, and they have a flexibility that our massive public high school doesn’t have. We’ll get it worked out. Patience is going to be tough, and keeping his state of mind right is going to require some real time and work together.

This really just caught us all flat-footed, and because we didn’t realize it early, it has led to a lot of complicated repercussions that we’ll just have to unwind over time.

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Update and frustration, so I’m kinda just venting.
He has been showing signs of getting better, but it’s a LOT of 2 steps forward, 1 step back. The exhaustion isn’t gone, but it’s a good bit better. Many days, he can function all day. He’s REALLY tired at the end of the week, but he can actually go all day sometimes.
Migraine frequency is nuts. He missed all or part of two days last week, as he had three migraines in that period.
And yesterday, baseball started. He had a good practice, and was SO happy. But...he was wiped. Ate dinner, in bed by 8, and this morning, he was exhausted and sore so he isn’t going to school till lunchtime, for a half day.
Will he be able to play baseball, which makes him SO happy, and inspired him? I don’t know.
Will be even be able to complete this academic year, or will we have to repeat it (a concept that, when we floated it a couple of weeks ago, elicited a VERY negative reaction from him)? I don’t know.
We’re working with a team of drs, but they h ent been much help yet. We changed pediatrician, so he’s still getting up to speed. We are getting a full comparative blood panel this week. And he sees a neurologist next week, hoping for some migraine relief. Also working with a sports nutritionist doc, who has a supplement regimen for him that he thinks will start helping in another week or so.
I’m just damned frustrated, I’m sad for my kid, I’m worried about him and his state of mind, and fucking goddamit. So, there’s that.

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We went through this with our freshman at UT in 2010-11. It was tough but she got through it with no apparent long lasting effects. Not that this is the cause of your kid’s mono, but IMO we have our kids doing too many activities and they can get run down and some of them come down with mono or other maladies. They need more down time. In our case, she dropped some activities at UT, got plenty of rest, and she got over it.

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2nd kid had mono at 6-7 cant remember exactly.   Knocked him down for months.... now he is 18 and I swear I think it totally changed his personality somehow.

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I had mono for an entire semester in college.  Fall semester junior year.  It caused my liver to inflame so I couldn't drink.  That killed my social life.  I was tired, had recurring fever, and terrible night sweats but did wonderful academically that semester because my social life was non-existent.  

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Are you sure the headaches are just migraines? I used to get cluster headaches. They would last for 2-3 weeks. I had my first around 18 or 19. Drs weren’t much help (probably my fault). Ended up on a steroid pack and that seemed to work. Got them again in college and went straight to dr for steroid pack that worked quick. In my 20s they came more often (almost annually). I went to acupuncture and that seemed to work better than steroids. From 29 to almost 35 I only had them twice. At 38 I had a really bad episode. Back to acupuncture. Unfortunately it was a different place because I had moved. Not as successful. Not sure why. They lingered for almost a month. That was the last episode as of yet, I’m almost 42. Jan-March used to be the most active times, so I always get a little nervous this time of year.

Headaches start anytime during the day, but mine were usually late morning/around noon. Last anywhere from 15 minutes to a few hours. Sometimes so bad they would almost knock me out of a chair. Most of the time just a constant drilling pain.

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One of our kids had a chronic illness that made getting her through the last  year of high school practically a full time job.  One of the best things one of the counselors/doctors told us was, "You have to meet her where she is at and not let your expectations and frustrations cloud what is the reality is.'

She is now taking a full course load in college and keeping a high GPA.

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