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The week before Thanksgiving I had bad abdominal pain for a few days along with some other symptoms that I had ignored for a few weeks. My doctor referred me to the er. I went in expecting an ulcer of some sort and ended up getting out of the hospital 8 days later with a colostomy and a diagnosis of stage 4 colon cancer with liver metastasis. I'm 40 years old. 

I had my first oncology appointment today and the outlook of similar cases is 50% make it 5 years and I will be on chemotherapy treatment for the rest of my life (however long that is). I have had probably 6 doctors say "you're the reason they lowered screening to 45, of course that wouldn't have helped in your case" 

 

Life can really come at you fast. 

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The week before Thanksgiving I had bad abdominal pain for a few days along with some other symptoms that I had ignored for a few weeks. My doctor referred me to the er. I went in expecting an ulcer of some sort and ended up getting out of the hospital 8 days later with a colostomy and a diagnosis of stage 4 colon cancer with liver metastasis. I'm 40 years old. 
I had my first oncology appointment today and the outlook of similar cases is 50% make it 5 years and I will be on chemotherapy treatment for the rest of my life (however long that is). I have had probably 6 doctors say "you're the reason they lowered screening to 45, of course that wouldn't have helped in your case" 
 
Life can really come at you fast. 

I don’t know what to say but I’m sorry you are going through this and I hope you find the strength to fight this cancer mofo and win.

God bless
1 hour ago, seven said:

The week before Thanksgiving I had bad abdominal pain for a few days along with some other symptoms that I had ignored for a few weeks. My doctor referred me to the er. I went in expecting an ulcer of some sort and ended up getting out of the hospital 8 days later with a colostomy and a diagnosis of stage 4 colon cancer with liver metastasis. I'm 40 years old. 

I had my first oncology appointment today and the outlook of similar cases is 50% make it 5 years and I will be on chemotherapy treatment for the rest of my life (however long that is). I have had probably 6 doctors say "you're the reason they lowered screening to 45, of course that wouldn't have helped in your case" 

 

Life can really come at you fast. 

No other symptoms at all? 

Just now, bluto said:

No other symptoms at all? 

I'm a fat guy and have lost about 20 pounds unintentionally and my appetite has halved over the last year, but it didn't occur to me that it was something to be concerned about. Other than that the worst of my medical history is a couple of ear infections as an adult. 

3 minutes ago, seven said:

I'm a fat guy and have lost about 20 pounds unintentionally and my appetite has halved over the last year, but it didn't occur to me that it was something to be concerned about. Other than that the worst of my medical history is a couple of ear infections as an adult. 

That's rough. @Troph is not wrong about getting yourself to MDA.  Give 'em hell!

2 hours ago, seven said:

"you're the reason they lowered screening to 45, of course that wouldn't have helped in your case" . 

One of my best friends (buddy from HS who I also roomed with my Sr yr in college) lost his 39 YO daughter to colon cancer last year, she was a Dr (Pediatrician) with a family history of colon cancer. They thought that 36 was too young to have it, and so they didn't screen for it. 

Goodspeed 7 - be one of group who beats the odds!
 

34 minutes ago, DalTxHornFan said:

That's rough. @Troph is not wrong about getting yourself to MDA.  Give 'em hell!

MDA has worked miracles for a few people I know.  One was given months to live and just celebrated her 10 year cancer free anniversary, and the other got 5 more above average years with his kids when he was staring at a death sentence.

3 hours ago, seven said:

The week before Thanksgiving I had bad abdominal pain for a few days along with some other symptoms that I had ignored for a few weeks. My doctor referred me to the er. I went in expecting an ulcer of some sort and ended up getting out of the hospital 8 days later with a colostomy and a diagnosis of stage 4 colon cancer with liver metastasis. I'm 40 years old. 

I had my first oncology appointment today and the outlook of similar cases is 50% make it 5 years and I will be on chemotherapy treatment for the rest of my life (however long that is). I have had probably 6 doctors say "you're the reason they lowered screening to 45, of course that wouldn't have helped in your case" 

 

Life can really come at you fast. 

I'm no statistician, but if 50% make it 5 years, I bet there's some % that make it 10, 20, 40 years. Go for it.

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6 hours ago, seven said:

The week before Thanksgiving I had bad abdominal pain for a few days along with some other symptoms that I had ignored for a few weeks. My doctor referred me to the er. I went in expecting an ulcer of some sort and ended up getting out of the hospital 8 days later with a colostomy and a diagnosis of stage 4 colon cancer with liver metastasis. I'm 40 years old. 

I had my first oncology appointment today and the outlook of similar cases is 50% make it 5 years and I will be on chemotherapy treatment for the rest of my life (however long that is). I have had probably 6 doctors say "you're the reason they lowered screening to 45, of course that wouldn't have helped in your case" 

 

Life can really come at you fast. 

You’ll need scans to really dial in where you are at on the spreading and staging.  That’s the most important thing to drill down on.  Mine was only about 20% chance of survival.   That had sent me down some dark paths.   Don’t go there.  Think positively (easier said than done I know).  

Just got a liquid 10 mg oxy.  oxy.  Hope I don't end up blowing dudes on Santa Monica Blvd before I know it.

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My 2 cents for everyone living with the "changes" that cancer, the surgery, and the treatments make to the human body. It sucks, lots, but after some time you adapt and it becomes more of an inconvenience than a horror. Three examples from people I know, one guy now gets all his nutrition through a tube. He still goes to work and has learned to chew and spit out food just so he can enjoy the taste. He has to spit in a cup because he can't swallow his saliva. He has adapted. That is his new normal. He works. He runs his few cattle. Another example, a prostate cancer surgery was less than perfect and he has to wear incontinence pads to catch "emergencies". That's his new normal. He has adapted. Another is in end stage ALS. He has lost use of his limbs, but his abdominal muscles still work. His wife cuts up his food and he bends over and eats it off the plate like a dog. This is his new normal. He has adapted.  

The guys above are as cheerful as possible given the circumstances, and their adaptations have allowed them to live a "normal" life...well not exactly normal, but they do have some joy and they aren't dead, which they would be had they not opted for the radical treatments that took away some function but allowed life. 

These guys are all heroes to me because I have watched them adapt and not allow the disease to take away their lives. 

Keep pushing forward. 

25 minutes ago, Not that Bob said:

My 2 cents for everyone living with the "changes" that cancer, the surgery, and the treatments make to the human body. It sucks, lots, but after some time you adapt and it becomes more of an inconvenience than a horror. Three examples from people I know, one guy now gets all his nutrition through a tube. He still goes to work and has learned to chew and spit out food just so he can enjoy the taste. He has to spit in a cup because he can't swallow his saliva. He has adapted. That is his new normal. He works. He runs his few cattle. Another example, a prostate cancer surgery was less than perfect and he has to wear incontinence pads to catch "emergencies". That's his new normal. He has adapted. Another is in end stage ALS. He has lost use of his limbs, but his abdominal muscles still work. His wife cuts up his food and he bends over and eats it off the plate like a dog. This is his new normal. He has adapted.  

The guys above are as cheerful as possible given the circumstances, and their adaptations have allowed them to live a "normal" life...well not exactly normal, but they do have some joy and they aren't dead, which they would be had they not opted for the radical treatments that took away some function but allowed life. 

These guys are all heroes to me because I have watched them adapt and not allow the disease to take away their lives. 

Keep pushing forward. 

That’s inspiring.  The changes are the things I’ve dreaded, but certainly manageable relatively.  It’ll be accepting that the things I’ve done for my entire life are now forever changed.  But I have a path forward.  Many here at City of Hope may not.

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On 12/7/2022 at 7:43 PM, seven said:

I'm a fat guy and have lost about 20 pounds unintentionally and my appetite has halved over the last year, but it didn't occur to me that it was something to be concerned about. Other than that the worst of my medical history is a couple of ear infections as an adult. 

This goes for everyone- don’t overlook ANY unusual symptoms of anything.  Get it checked out.  The worst (or best) thing is that they find nothing.  Great.  But getting the jump early probably saved my life.  Esophageal cancer has fairly poor outcomes mostly because it is detected too late.  As soon as I started having difficulty swallowing food, and it didn’t clear up for a few weeks, I reached out to my GI and got an endoscopy.  I was what they refer to as stage 3+, which means it had spread only to localized lymph nodes and not elsewhere.  But it would have pretty shortly thereafter.  And then it’s a totally different ballgame.  So get checked out asap.  It most certainly can be a matter of life and death.

Day 6 in the hospital.  A bit better each day.  But it’s incremental.  It’s clear this is going to be a long slow recovery.  Oh and I should post in the short thread that I shit myself in bed trying to pass gas as I’m very bloated with my new plumbing design. 

The week before Thanksgiving I had bad abdominal pain for a few days along with some other symptoms that I had ignored for a few weeks. My doctor referred me to the er. I went in expecting an ulcer of some sort and ended up getting out of the hospital 8 days later with a colostomy and a diagnosis of stage 4 colon cancer with liver metastasis. I'm 40 years old. 
I had my first oncology appointment today and the outlook of similar cases is 50% make it 5 years and I will be on chemotherapy treatment for the rest of my life (however long that is). I have had probably 6 doctors say "you're the reason they lowered screening to 45, of course that wouldn't have helped in your case" 
 
Life can really come at you fast. 
sorry to hear that you joined the club 7. I’m a stage three colon cancer guy who was told I had Mets in my lungs and my liver. Liver Mets confirmed on every CT I’ve ever had. However, it turned out that my lungs were OK except for the asthma scarring. Shitty asthma is better than cancer, so I got that going for me, which is nice.…
I had markers implanted in my liver at MDA, as they were about to hack part of my liver away. Cutting the cancer out of your liver is supposedly the only “cure”.    Since they were already jabbing me in the liver, they decided to biopsy the presumed liver Mets. They may have been cancer once, and they may start growing again, but they could not find any cancerous cells in the biopsies so I sit here three years later without any sign that the spots on the liver are growing. 
 
Let me echo what people are saying about having things looked at as soon as you have a symptom, even though you aren’t in the statistical group. The number of colon cancer cases are increasing, and they affect an ever younger population. Under no circumstances go 10 years between check ups, I did, and when I finally did my routine colonoscopy they found a giant effing tumor. When it was cut out, it was only 1/16 of an inch away from breaching the colon and seeding my entire abdomen with cancer.
Even though I have stage three cancer,  and even though it might come back, I take comfort in whatever time remains for me.  7 - you never know when there will be a medical breakthrough that is a game changer for your particular cancer and condition. Our only job is to suck up whatever bad things we have to suck up, and kick the can down the road until they find a cure for us. The can being, of course, staying alive as long as we can until the good stuff comes.  I will be thinking of you seven, and I have run into stage 4 colon cancer survivors with liver mets who’ve been hanging around 10-15 years
Like RD mentioned, no matter what the statistics are,  there are always some bastards who fight and survive for long periods of time. I know you are going to be that guy buddy. 
 
On 12/8/2022 at 2:09 AM, Sbbruin said:

Just got a liquid 10 mg oxy.  oxy.  Hope I don't end up blowing dudes on Santa Monica Blvd before I know it.

I’m just spit-balling here SB, but I’m guessing that sometime before their dicks actually got in your mouth, you would know it.

7 so sorry for your diagnosis. Fight like hell. It’s serious but you’re not at the Alamo. You can beat this. Explore everything. Praying for you.

An old boss called me from vacation. “Last night I had a seizure, quit breathing, damn near died. They told me I have a big brain tumor. “

He returned to Des Moines. He had a late stage 3 astrocytoma. Local brain doc said there was nothing that could be done surgically, wanted to radiate it, something that isn’t done by state of the art guys anymore. Said he’d have an agonizing time then die. Went to Mayo and they went in and did a biopsy. Said it was deep; they’d remove what they could, would buy some time. He finally got into Duke. Had their top neurosurgeon. He removed it all, where it lives in a lab providing samples for research. No chemo, no radiation. That was 2007. Only Duke gave his a great prognosis. He is disease free. Shop around. Get to MDA. Go elsewhere and get second opinions from your research.

I don’t get why folks with genetic family histories are not hauled in for colonoscopies from their teens and put on a proper schedule based on what’s found. Annual, 3 year, etc. take charge of your health!

disregard, Surly did a weird thing and posted my multi quote in the wrong thread 

 

Edited by Homercles

On 12/12/2022 at 6:12 AM, Texzilla58 said:

He finally got into Duke. Had their top neurosurgeon. He removed it all, where it lives in a lab providing samples for research. No chemo, no radiation. That was 2007. Only Duke gave his a great prognosis. He is disease free. 

I spoke with that doc, if he's one of the two brothers who are leaders in brain surgery.  My dad was diagnosed with glioblastoma multiforme at age 86, and I had his doc in StL send dad's scans to Duke.  That guy called me and said "get him here, now".  It was about a 30 second conversation.  No bedside manner to speak of, but I didn't care.

Dad didn't want to go, did some steroid and radiation treatments, no chemo, no surgery, and died several months later.  He chose his path, we all knew the odds were lousy even at Duke, but that is absolutely the top hospital in the country for those type of cancers.

Edited by jimmyjazz
speling

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21 hours ago, jimmyjazz said:

I spoke with that doc, if he's one of the two brothers who are leaders in brain surgery.  My dad was diagnosed with glioblastoma multiforme at age 86, and I had his doc in StL send dad's scans to Duke.  That guy called me and said "get him here, now".  It was about a 30 second conversation.  No bedside manner to speak of, but I didn't care.

Dad didn't want to go, did some steroid and radiation treatments, no chemo, no surgery, and died several months later.  He chose his path, we all knew the odds were lousy even at Duke, but that is absolutely the top hospital in the country for those type of cancers.

I lost one of my lifelong close friends to glioblastoma a couple of months ago.  It is virtually incurable, but there are some cases.  He tried immunotherapy but just too late and it was too aggressive.

Made it home last night after 9 days in the hospital.  And almost had an immediate catastrophe.  The home nurse came by, and we went through the feeding tube pump operation and medicine delivery through the feeding tube.  In the hospital we used liquid Tylenol, but didn’t have that so she used a pill crusher on some regular pills.  Well apparently she didn’t let it dissolve enough and the feeding tube got clog, way down deep.  Could not clear it for like 20 minutes after multiple different approaches were used.  We were 2 minutes from having to return to City of Hope and potentially have it surgically removed and replaced.  Would be no other option.  But one last push and it cleared.  I would have literally broke down in tears if I had to return to the hospital an hour after finally coming home.

Hang in there, my dude. Sending out all my optimism (a feeble amount it may be) for you to get back to some routine and comfort. Don’t forget I need your Dodger fandom here as a bulwark against these damn Astros fans. 
 

Los Angeles Dodgers GIF by MLB
 

that goes for everyone even tangentially dealing with this cunt disease. Fuck cancer in the goatass!

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Well admitted back to the hospital with pneumonia.  Lovely.  At the height of discouraged.  

11 minutes ago, Sbbruin said:

Well admitted back to the hospital with pneumonia.  Lovely.  At the height of discouraged.  

We all pulling for you buddy

13 minutes ago, Sbbruin said:

Well admitted back to the hospital with pneumonia.  Lovely.  At the height of discouraged.  

You got this.  Posting on surly is a guaranteed cure.

Dammit, @seven and @Sbbruin. Really sorry to read all this. I hope you continue to have a support network – on this silly little website as well as through your family and loved ones – to get you through it.

My dad got bladder cancer at 76 and is in remission, but other than that no other cancer in my family. My fiancé lost both her parents to cancer within two years of each other a few years ago (both were smokers). We’ve talked about getting a couples colonoscopy in early 2023.

Well admitted back to the hospital with pneumonia.  Lovely.  At the height of discouraged.  

Keep on keepin on, Bruin. Setbacks suck, but they’ll happen, and you’ve got this. Plenty of time for them to tackle it, and for you to be home and grinch-y by Christmas.
57 minutes ago, South Austin said:

We’ve talked about getting a couples colonoscopy in early 2023.

That’s lovely.  Maybe try to schedule it for Valentine’s Day.  

2 hours ago, Sbbruin said:

Well admitted back to the hospital with pneumonia.  Lovely.  At the height of discouraged.  

Discouraged is being admitted to the hospital with pneumonia in an era before antibiotics. You got this buddy!

Make sure to get the nurses to check your dick catheter. (backstory: he has no catheter)

That’s lovely.  Maybe try to schedule it for Valentine’s Day.  

Nothing says romance like, “I wanna watch another person put something in her butt.”
5 hours ago, Sbbruin said:

Well admitted back to the hospital with pneumonia.  Lovely.  At the height of discouraged.  

Yikes, good luck buddy. Things will get better. 

Well admitted back to the hospital with pneumonia.  Lovely.  At the height of discouraged.  

Sorry to hear but keep swinging and fight.do your breathing treatments awful as they are.
I spoke with that doc, if he's one of the two brothers who are leaders in brain surgery.  My dad was diagnosed with glioblastoma multiforme at age 86, and I had his doc in StL send dad's scans to Duke.  That guy called me and said "get him here, now".  It was about a 30 second conversation.  No bedside manner to speak of, but I didn't care.
Dad didn't want to go, did some steroid and radiation treatments, no chemo, no surgery, and died several months later.  He chose his path, we all knew the odds were lousy even at Duke, but that is absolutely the top hospital in the country for those type of cancers.

Sorry about your old man. He knew what was going on. Glioblastomas are damn near a death sentence. My boss’ astrocytoma is a very different tumor and can be treated by the right doc.
8 hours ago, Sbbruin said:

Well admitted back to the hospital with pneumonia.  Lovely.  At the height of discouraged.  

GWS, Hoss. 

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I posted this some 10 years ago on TOS. This is to the best of my memory as I didn’t save it:

My wife was in M.D. Anderson Hospital for a delicate surgery. Her specialist said the surgeon at Anderson was “the best”, so that’s how she got admitted to M.D. Anderson, even though she didn’t have cancer. It was “only” a benign tumor, but believe me, a benign tumor in the wrong place is not good. If you are admitted to M.D. Anderson it’s a sure bet that you are sick.

We went to the Cafeteria to break the monotony of the room and to get something other than the food on the food service tray. The Cafeteria at M.D. Anderson is a large well lit and relatively welcoming place. Once we got our food and took a table we started to notice our fellow diners. There was a pretty little girl to my left, probably 12 or 13. Pale white skin and jet black hair. My wife and I decided that with her pale skin and black hair she was Snow White, and have since fondly remembered her by that name. Snow White was wheeling her IV pole with her, as did most of the other diners. A forest of IV poles carrying bags of medication and chemotherapy. I realized that Snow White’s jet black hair was a wig. She had lost all her hair to chemotherapy. She was bald, but she didn’t seclude herself in her hospital room. She came to the Cafeteria, not a freak or a cripple, but a human being…having lunch with the rest of us human beings. At the table to my right was a family, a kid who looked to be the oldest son was the member tethered to the IV pole. I could hear the Dad telling nonstop corny jokes and generally yucking it up.  He was trying to bring some humor and levity to his families’ table. Trying to lighten everyone’s mood. Trying to suppress his own tears.  Trying to not allow the IV pole to be the only thing in the room. Trying the help his son to be not a freak or a cripple, but to be a human being having lunch with the rest of the human beings. The next day’s lunch, a table to my left. The son, middle teens I guess, in a wheelchair and obviously with cerebral palsy, or some type of palsy that made his movements difficult and clumsy. Despite the great difficulty of movement, the family allowed him to feed himself. His movements with the utensils were very slow and intentional. He dropped very little. It was clear that his family had spent countless hours helping him learn to be independent. His dad, now with the inconvenience of an IV pole in tow, pushed his son’s chair a little closer to the table. Dad didn’t let this inconvenience alter the ongoing helping and teaching of his son.  This giant of a father, who spent God knows how many hours helping, teaching his son how to be, not a freak or a cripple, but a human being having lunch with the rest of us human beings.

Heroes to me, like my friends mentioned above? Damn right!

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Had a bad feeling about the last CT scans. Dunno why. Just doom.

Got to see the doctor today. "Hey, your scans are great!" and we talked about getting off Keytruda in February to see if the remaining lesion was stable, as she has suspected it is.

I was like "So this is GOOD news."

She: "it's top ten percent as far as possible results go."

So I go about my day, happy.

Somewhere down the hall, somebody else might have gotten the bottom 10% of possible results. I'm still happy, just all deep-like. Accept what you're given.

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@Not that Bob I agree.  Seeing kids at City of Hope smiling despite what they are going through is a beautiful and depressing experience.  Bless them all.

Got sprung.  Responded well to the antibiotics, had a drainage tube inserted into my chest cavity to drain fluid.  Cough is still brutal and painful with every cough where the tube was inserted.  Trying not to dope up too much on Oxy though.  Mostly when I sleep.  Just feeling really beat to shit.  But onward and upward.

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13 minutes ago, RDCanecutter said:

Had a bad feeling about the last CT scans. Dunno why. Just doom.

Got to see the doctor today. "Hey, your scans are great!" and we talked about getting off Keytruda in February to see if the remaining lesion was stable, as she has suspected it is.

I was like "So this is GOOD news."

She: "it's top ten percent as far as possible results go."

So I go about my day, happy.

Somewhere down the hall, somebody else might have gotten the bottom 10% of possible results. I'm still happy, just all deep-like. Accept what you're given.

Last line indeed.  Easy to play the “why me?” card.  But if not me, who?  Anger solves nothing.  Just strap in and fight the good fight and hope for the best.  Just get the best care team you can.  Anderson is absolutely top flight.  We are lucky out here to have a few, between City of Hope, UCLA, and Keck/USC.  I feel for those whose treatment is handled by the local general hospital by someone who may be far from an expert in a particular cancer.  Or who have to spend tens of thousands relocating to one of the top centers.  My main doc at City of Hope (thoracic surgeon) is among the very best in the country dealing with esophageal cancer.  And he’s 20 minutes away.

Mom is on her 4th chemo treatment, and #5 might be the last one she needs. Incredible considering on Memorial Day weekend I find out she has a tennis ball sized tumor in her brain (to be fair, most of that mass was cyst, but still). 

 

Really making me want to not waste life. Seven is my age. I feel like I've lucked out more than a few times in my youth - maybe I should start enjoying more and doing more shit. 

Bruin, my wife's specialist is at UCLA. He saved her life and she's still here to bitch at me 10 years later. The specialist just happened to be acquainted with the surgeon at M.D. Anderson. Small world, lucky circumstance and all that. I try to remember that every day is a gift. I'm not very good at it but at least I know I should. 

Keep pushing forward.

  • 2 weeks later...
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I would kindly like to ask 2022 to GTFO.  I have never in my life wanted to put a year behind me more than this one.  So, Mr. 2022, a bid you a fine go fuck yourself middle finger GIF

1 hour ago, Sbbruin said:

I would kindly like to ask 2022 to GTFO.  I have never in my life wanted to put a year behind me more than this one.  So, Mr. 2022, a bid you a fine go fuck yourself middle finger GIF

Fine with me too. 
EE9BC8DF-91CF-4840-9B13-F6F5193C6E63.gif.a702422f52661eadf352e654c9a2d418.gif

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For all of you currently battling cancer, I raise my glass to you all with warm wishes for a positive 2023.  Keep kicking cancer’s ass!!

6 hours ago, Sbbruin said:

I would kindly like to ask 2022 to GTFO.  I have never in my life wanted to put a year behind me more than this one.  So, Mr. 2022, a bid you a fine go fuck yourself middle finger GIF

Shit man, I don’t know.   I said this on New Year’s Eve 2019, 2020, and 2021, and every year the next year was worse. I hope all of us turn the corner this year.

  • 4 weeks later...
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Well I guess a little update may be in order.  Got my feeding tube out last week (zero tubes in me, down from 6 originally) so I’m on only oral foods, which has been a real hit or miss.  Been on some solid foods for a few weeks, but i really struggle with nausea and (sorry) quite a bit of puking.  Just get food caught in what’s left of my esophagus.  Frustrating.  I’ve lost about 20 lbs so I guess there’s an Upside But I’ve been able to make it into work for a couple half days.  Working from home the other days.  Just can’t put as much into work as I probably need to, but pushing things forward as best I can.  Physical strength is pathetic.  A walk around the block feels like running a marathon.  Hopefully can turn that around soon.

Well I guess you could be on anal foods. So youve got that going for you which is nice.

 

Good update Bruin. Hang in there

 

 

 

40 minutes ago, Sbbruin said:

Well I guess a little update may be in order.  Got my feeding tube out last week (zero tubes in me, down from 6 originally) so I’m on only oral foods, which has been a real hit or miss.  Been on some solid foods for a few weeks, but i really struggle with nausea and (sorry) quite a bit of puking.  Just get food caught in what’s left of my esophagus.  Frustrating.  I’ve lost about 20 lbs so I guess there’s an Upside But I’ve been able to make it into work for a couple half days.  Working from home the other days.  Just can’t put as much into work as I probably need to, but pushing things forward as best I can.  Physical strength is pathetic.  A walk around the block feels like running a marathon.  Hopefully can turn that around soon.

God bless man. Keep fighting, one day at a time.

4 hours ago, Sbbruin said:

Well I guess a little update may be in order.  Got my feeding tube out last week (zero tubes in me, down from 6 originally) so I’m on only oral foods, which has been a real hit or miss.  Been on some solid foods for a few weeks, but i really struggle with nausea and (sorry) quite a bit of puking.  Just get food caught in what’s left of my esophagus.  Frustrating.  I’ve lost about 20 lbs so I guess there’s an Upside But I’ve been able to make it into work for a couple half days.  Working from home the other days.  Just can’t put as much into work as I probably need to, but pushing things forward as best I can.  Physical strength is pathetic.  A walk around the block feels like running a marathon.  Hopefully can turn that around soon.

Baby steps, Bruin.  Why don’t you eat some outrageously, high butterfat percentage gourmet ice cream, with a Lipitor chaser.   At some level calories or calories

Edited by Gatorubet

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